Programs of The DONNA Foundation
The DONNA CareLine
The DONNA CareLine serves uninsured and insured patients all across the country at no charge to help overcome and resolve insurance-related and financial obstacles that impact care. Data collected on behalf The DONNA Foundation reflects almost 67% of the families requesting assistance have an annual income of less than $23,000.
DONNA CareLine recipients face a wide scope of challenges ranging from access to or no care issues, insurance denials, transportation expenses and cost of living debt. We provide specific case management services to patients, caregivers and/or their providers. The CareLine is staffed by a team of professional case managers with both nursing and social work backgrounds, and non-clinical case managers who have an insurance industry background with coding and billing expertise. Using their knowledge of reimbursement issues, the purpose of this dedicated team is to help patients diagnosed with breast cancer with navigating a variety of issues they may be facing. Thus minimizing stressors in a patient’s life, allowing them to focus their positive energies on getting better.
The DONNA CareLine offers patients diagnosed with breast cancer assistance with the following:
- Access to care issues
- Assist patients with insurance denials
- Assist with workplace and employment protections
- Review and educate on insurance plan language
- Employment challenges including loss of income and compromised benefits that impact access
- Medical debt crisis that has impacted or stopped required care
- Cost of living debt crisis that forces many to choose between paying for treatment or paying for their essential costs of living,
often resulting in a decision to go off therapy
- Screening for the DONNA Financial Aid Fund providing small grants to help offset expenses related to care.
Although the word survivorship can mean different things to different people, survivorship for most begins at diagnosis and continues for a lifetime as a family learns to live with, and beyond, breast cancer. Survivorship can be one of the most complicated parts of having breast cancer, because it is different for everyone. The DONNA Foundation strives to provide survivors and their families a sense of community throughout the year by providing specifically designed programming, events and information. Here are just a few examples:
How to be Fearless Virtual Seminar presented by Amgen
Held in conjunction with the 14th Annual National Marathon to Finish Breast Cancer, The DONNA Foundation presented a virtual seminar series spotlighting important topics including health equity and advocacy, advancements in breast cancer therapies, and learning to race fearlessly from the best of the best. Expert panelists included Donna Deegan, Dr. Edith Perez and experts from Mayo Clinic, Lindsey Hein, Olympian Jeff Galloway and more! All sessions now available for on demand viewing.
DONNA Morning Mixer
Introduced in October of 2018, this social group brings together DONNA CareLine recipients, their caregivers and other breast cancer survivors for conversation and support. This Mixer strives to provide a safe environment to share experiences, knowledge and encouragement. The Mixers take place quarterly over coffee and pastries and have several host locations throughout Jacksonville to accommodate families across the city and the surrounding areas. The program is working to expand its format to include educational experiences focused on after care, health and wellness, emotional challenges, and defining a new normal.
The Fearless Series Survivor Participation Program
The DONNA Foundation’s endurance events, DONNA Marathon Weekend, PLAYERS DONNA 5K, and DONNA Puck & Stick Stair Challenge, are all designed to raise funds and awareness for The DONNA Foundation’s mission. Each of these events feature survivor-focused opportunities. Participants self-identify through event registration and are provided with specifically designed race bibs, markers and/or other materials. These items promote a sense of community for the survivor and their family, both on and off the event course. These events engage survivors in a real time setting, promote conversation, and allow them to share their stories. Their voices become part of our Education & Awareness campaigns, continuing to elevate and celebrate survivors as they define their lives after cancer.
Health & Fitness Expo
Each February, The DONNA Foundation hosts a two-day Health & Fitness Expo. This event features many of the top pharmaceutical companies and healthcare providers committed to the care and support of breast cancer patients and their families. More than 20,000 visitors from around the country participate in the event, engaging with educators and interactive displays. Thanks to the generosity of event sponsors, this two-day educational program is free and open to the public.
The DONNA Foundation is committed to funding ground breaking breast cancer research. Each year The DONNA Foundation raises funds, through DONNA Marathon Weekend, allocated to Research Disbursement. From an initial contribution from The DONNA Foundation to Mayo Clinic of more than $500,000 in 2008, Mayo Clinic established its Breast Cancer Translational Genomics Research Program. Ongoing contributions from The DONNA Foundation, as of April 2016 totaling more than $3 million, allow Mayo Clinic to build and maintain genomics infrastructure in Jacksonville, Florida. Making it possible for laboratory teams not only to carry out state of the art breast cancer research, including the widely publicized Triple Negative Breast Cancer Vaccine Trials, but also provide genomics support for studies in all cancers.
“It is awe-inspiring to think about how a love of running brought together an idea to transform breast cancer care. As a physician-researcher, I am honored by the partnership and support Mayo Clinic has with The DONNA Foundation. Thanks to the funds raised through the marathon and other efforts, we have been able to grow the Breast Cancer Translational Genomics Program and expand our research, which is changing the way we treat patients every day. We are excited by the findings we’ve uncovered in our work, including the ability to identify key tumor characteristics and how they respond to certain therapies. We are now able to offer patients multiple clinical trials, including vaccines to address recurrence. We still have work to do to reach the finish line but we are motivated by our patients and by hope that we will win this race against cancer.”
Edith A. Perez, M.D.
Education & Awareness
The DONNA Foundation is committed to providing programs for education and awareness of important topics of health, wellness and living with breast cancer. The DONNA Foundation partners with likeminded organizations to participate in panel discussions, symposiums, health fairs, and other informational outlets.
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Health & Fitness Expo
Each February, The DONNA Foundation hosts a two-day Health & Fitness Expo in Downtown Jacksonville, Florida. This event features many of the top pharmaceutical companies and healthcare providers committed to the care and support of breast cancer patients and their families. More than 20,000 visitors from around the country participate in the event, engaging with educators and interactive displays. Thanks to the generosity of event sponsors, this two-day educational program is free and open to the public.
Speaker’s Bureau Lunch and Learn
We have a group of ambassadors, survivors and staff available to speak at events throughout the year. Each of our speakers bring a special story. We are happy work with your organization through our Lunch and Learn program. We can help tailor a conversation specific to your goals and when appropriate we may be able to provide additional health staff and materials. The Foundation may also provide staff and educational materials for community events ranging from health fairs to breast cancer awareness rallies, based on availability and need.
Please complete this form to share your request with us. You can expect a response in 24 to 48 hours, excluding weekends and holidays.
Looking for Donna?
The Foundation’s namesake and Chief Eternal Optimist (CEO), Donna Deegan, participates in The DONNA Foundation’s Speaker’s Bureau as well. Her motivational message highlights her experience as a three-time breast cancer survivor and encourages all with life altering challenges to change their perspective from one of fear to one of love. Donna is the author of two memoirs, The Good Fight, a chronicle of her own breast cancer treatment and recovery, and Through Rose Colored Glasses, a Marathon from Fear to Love.
If you would like to request Donna to speak or make an event appearance, please note her schedule fills up fast, bookings are based on her availability and a $5,000 donation to the foundation is required. Please complete this form to request Donna’s participation at your event.